This week, I took a tour of Ryan House in Phoenix. It is a short-term respite home for children with exceptional medical challenges and their families. The photo tour online does not communicate the love and warmth that were infused into the planning of this lovely place.
With eight beds, it can serve the palliative needs of children early on in their life giving them a safe and enjoyable place to stay while their parents get a much-needed break. And when the child's life comes to an end, the house can serve as place of true rest for child and family.
But, you ask, why would Esra need this?
With the opening of Ryan House just two months ago, I can now take advantage of 28 days per year where Esra can stay there for consecutive 24-hour periods, get all of her medical needs cared for, have a watchful eye for infections, and there is no out-of-pocket expense for our family.
I was so inspired by this place. After visiting the Ryan House, I began to see the benefits of incorporating features of a hydrotherapy room with a lift, along with PT, Music and Sensory rooms. Ryan House didn't have a climbing wall and gymnastics bars and mats, but I could see them at our house.
We already have some dedicated homeschool space for Esra and Estelle...an accessible dramatic play area, a library/reading nook, an art area and music area. But there is always room for improvement.