Wednesday, May 25, 2011

On Walking



As we see Esra push her limits, we realize that she really does not have any inner limitations. Add sheer will with the amazing speed of technology, and we have one Esra who can do great things.

During my pregnancy with Esra, she was breech.  I can still recall the strange stretching made by her little body.  She was nestled in my womb as if she were sitting in a hammock.  Her head shaded by my ribs and her bottom resting on my bladder.  Her legs and feet stretched straight, pointing out towards my side.Her physical movement was slight as she rarely moved or readjusted. But I knew she possessed a great spirit.

So, when the neonatologists predicted her legs would never have any neurological function or feeling, I was puzzled because, deep down, I knew it didn't matter if she did not have leg function, she still had a great purpose one earth and she would accomplish great things. But his forecast has still shaped how I see her and her abilities.

Thanks to Tami, our optimistic physical therapist, she has helped me create a new picture of Esra in my mind's eye, now and in the future.  I wanted to share this fantastic TED talk about human exoskeletons, since we at the Edwards house are thinking much about adaptive technology.  Plus, we are contemplating what direction to take next.  We know wheelchairs will be a primary support for Esra, but we are pleased to have more options for exercise, movement in our home, and beyond.

Sing Something


In the last post, you read about Esra's new penchant for belting out her favorite songs. Well, we had a moment not too long ago to capture her emerging skill on video.

She is rather shy and timid when she is with others, but when she is alone, she does not hesitate to carry a happy tune. But since we are all in the room with her, there isn't much singing going on. She is trying to conduct the song!

Our little recording session has a part 2 and part 3, if you are interested.


Tuesday, May 10, 2011

Gaining Ground



This weekend, I went away for a medical conference in Seattle. I was only gone for three days. But I when I got back, I noticed that Esra looked different. But I wasn't quite sure how.

So, when Tami came for our weekly PT visit yesterday, I was astounded when she said Esra grew at least two inches! Tami explained that the growth came with Esra "walking" in earnest everyday for the past week.

She gets faster and more confident each day. I am amazed as I watch her practicing in her walker/standing frame combo. To think all those unused muscles and bones have gotten the message that they are now required! "Get to work", Esra is telling them.


I am ecstatic for this new dimension in her mobility. We are gaining ground in more ways than one. Because she is becoming the master of her body, her confidence shines and she is speaking more words, more sentences, and she is singing! She won't sing on command, but if you come and sit in an adjoining room, out of site from Esra, you can hear her sing "I am a Child of God" and "Love One Another".

Grand messages for anyone who might be having trouble gaining their own ground.